Podcasts

Podcasts

PRIM&R and the Human Research Protection Office at Washington University in St. Louis(WU) have partnered to create More than Meets the IRB: A joint initiative of Washington University in St. Louis and PRIM&R, a series of relevant, and educational podcasts, provided at no cost to an ever-growing audience of research ethics professionals and lay people.

Subscribe to the podcast on iTunes or Stitcher, listen on Google Play Music, or sign up to be notified when a new podcast is available.

Rethinking Our Perspective in Pursuit of Empathy

This week’s episode of More than Meets the IRB brings back the podcast’s very first guest! The new episode aims to shift the perspective of IRBs to include the often-neglected point of view of actual participants when designing consent. It also taps into the role of empathy and how researchers and IRB members can channel it to better protect subjects.

Internet Research Ethics through the Lens of History

This episode of More than Meets the IRB takes us back to the early days of the internet, internet research, and internet research ethics. The advent of this powerful tool presented a new kind of challenge for IRBs, who must figure out whether and how the existing bioethics research principles apply in online spaces.

Personal Narratives in Research Ethics History

Today’s episode of More than Meets the IRB explores the research ethics field’s origin and the values behind its foundation. Given the impending implementation date of the revised Common Rule, now is an excellent time to reflect and discuss the research ethics field, the history of the IRB, and the reasons why it all started.

Informed Consent with ROMP

In this installment of the More than Meets the IRB: A Joint Initiative of Washington University in St. Louis, and PRIM&R, we talk about the ethical and regulatory considerations of research on medical practices (ROMP). Dr. Benjamin Wilfond, director of the Treuman Katz Center for Pediatric Bioethics and a pulmonologist at Seattle Children’s Hospital, recently published a study on the ethical and informed consent considerations of research on the types of care that work best in clinical practice.

Exploring the Researcher-IRB Disconnect

In this episode of More than Meets the IRB: A Joint Initiative of Washington University in St. Louis and PRIM&R, we speak with Dr. Robert Klitzman about transparency and consistency of IRBs in addition to their sometimes-fraught relationship with investigators.

The IRB and the Community It Serves

In this episode of More than Meets the IRB: A Joint Initiative of Washington University in St. Louis and PRIM&R, we speak with Fred Koning, M.Div, Th.M, M.S., about the role of the non-scientist community member on the IRB.

Proposals for the Future of the Consent Process

In this episode of More than Meets the IRB, we talk with PRIM&R Executive Director Elisa Hurley about the controversial elements of the NPRM and those that ultimately made it into the final rule. This episode considers challenging questions about the future of research: what might change in how we build policy within the United States?

The Ethical Challenges of Addressing the HIV/AIDS Pandemic

In today’s episode of More than Meets the IRB, we hear from awardee of the Presidential Medal of Honor Dr. Anthony Fauci on some of the ethical challenges he faced in addressing the HIV/AIDS pandemic. It’s an engaging and wide-ranging narrative: from Fauci’s publicly denouncing the FDA’s process of delivering certain drugs to individuals to his receiving presidential acknowledgement for a creative idea of how to bring drug access to these patients.

Henrietta Lacks - Importance of Consent, Communication and Ethics in M

In today’s episode of More than Meets the IRB, we listen in on a conversation from PRIM&R’s AER14 Conference among members of Henrietta Lacks’ family, a member of the NIH, and a representative from Johns Hopkins University.

The Century of the System

Today’s episode of More than Meets the IRB investigates the role of ethical review in a dramatically changing scientific landscape where ineptitude, not ignorance, is becoming a focus of public health. Dr. Atul Gawande reveals a practical solution that is successfully addressing ineptitude among surgery teams across eight different locations around the world.

Why Are Minority Groups Less Likely to Participate In Research?

Today’s episode of More Than Meets the IRB includes segments from a panel discussion entitled “Increasing the Public’s Understanding of Clinical Research” and focuses on the question of why minority groups are less likely to participate in research. Giselle Corbie-Smith and Margo Michaels are the featured presenters.

The Malaria Project and The Rise of Research Ethics

Today we’re talking to Karen Masterson, the scientific journalist who wrote The Malaria Project, a book detailing the history of the US government’s attempts to find a cure for malaria during World War II.

The Evolution of 'Beecher’s Bombshell'

During her keynote address at the 2014 Advancing Ethical Research Conference, Dr. Lederer discusses the significant and compelling role Henry K. Beecher played in the world of clinical research ethics.

The Facebook Study and Social Media Ethics

With the proliferation of social media in our daily lives, the way we communicate has been completely transformed. Our guest is Jeff Hancock, formerly a professor of information science and communication at Cornell and currently a communications professor at Stanford, who is well known for his research and TED Talk on how people use deception with technology.

Ethical Research and Privacy in the Age of Social Media

In this panel session from the 2013 PRIM&R Advancing Ethical Research Conference, we continue to look at the shifts and trends in social media use that impact the way we culturally perceive privacy and risk. 

Bioethics Commission Shares Key Findings of the Gray Matters Report

During this podcast, we talked to Nicolle Strand and Elizabeth Fenton of the Presidential Commission for the Study of Bioethical Issues (the Bioethics Commission), which is an incredible but surprisingly underutilized resource when it comes to reviewing human subjects research. We are going to specifically discuss the Bioethics Commission's report Gray Matters: Integrative Approaches for Neuroscience, Ethics and Society, which looks at the ethical issues associated with neurological research.

Neuroscience Research and the Rise of Neuroethics

In this podcast, we continue our discussion of the ethics of neuroscience research with an excerpt from a panel entitled “When Social Psychology and Neuroscience Research Merge” at the 2007 HRPP Conference during which Dr. Kevin Ochsner of Columbia University addresses the pragmatic concerns of a social cognitive neuroscientist.

Goals for Improving the Informed Consent Process in Behavioral Researc

This week's guest is Dr. Camille Nebeker, a scientific and research ethics professor and the principal investigator of Connected and Open Research Ethics (CORE) at the University of California, San Diego.  In this podcast, Dr. Nebeker shares the organization’s goals for navigating the privacy issues involved with behavioral research and helping to advance the field in an ethical fashion by joining forces with other institutional reviews boards (IRBs) and researchers.

The Evolving Nature of Privacy, Confidentiality, and Anonymity

Today we're learning from John Wilbanks, chief commons officer at Sage Bionetworks, who has authored numerous publications about data sharing. On this panel, The Evolving Nature of Privacy and Confidentiality from the 2014 AER Conference, he discusses the evolving nature of privacy, confidentiality, and anonymity when it comes to collecting and analyzing "big data."

Trust in the Participant-Researcher Relationship

In our last episode we interviewed Aminu Yakubu who highlighted the issue of trust as a key concept in research ethics. This reminded us of the keynote speech at the 2004 PRIM&R IRB Conference, where Dr. Edward Gabriele spoke about the moment he realized that human research ethics and the IRB process are all about trust.

Ethical Issues Surrounding Global Research

Our guest Aminu Yakubu discusses the current state of global research as well as some of the ethical issues brought to light by the recent Ebola epidemic.