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Research Ethics Reimagined
“Research Ethics Reimagined” is a podcast created by Public Responsibility in Medicine and Research (PRIM&R), hosted by Ivy R. Tillman, PRIM&R's executive director. Here, we talk with scientists, researchers, bioethicists and some of the leading minds exploring new frontiers of science. This season, we are going examine research ethics in the 21st century -- and learn why it matters to you.
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Latest Episode
Season Two - Episode One: “Ethics in Orbit With Rachael Dempsey”
During our first episode of Season 2 of "Research Ethics Reimagined," Guest Host Robert Nobles, DrPH, MPH, CIP takes us beyond our usual conversations into the cosmos—literally. Our guest is Rachael Dempsey, the Chief Operations and Communications Officer at the Translational Research Institute for Space Health, also known as TRISH. TRISH is at the forefront of safeguarding human health in space, working alongside NASA and leading institutions like Baylor College of Medicine, MIT, and Caltech to tackle the challenges of long-duration space travel.
Season Two - Episode Two: “Progress, Gaps, and the Future of Women's Health with Doretha Walker, MPA, PhD, and Brenda Jamerson, PharmD”
In this episode, Doretha Walker, MPA, PhD, and Brenda Jamerson, PharmD, join us to explore the evolution of women’s health research since the NIH Revitalization Act of 1993. They’ll discuss how women’s health understanding has evolved, key advancements, and the impact of the lack of diversity in clinical trials. Our guests will also highlight critical gaps in women’s health research and how we can address them.
Season Two - Episode Three: “Community Engaged Research with Monica L. Albertie”
In this episode of PRIM&R's podcast, "Research Ethics Reimagined," we explore community engaged research and its role in advancing health equity, particularly in cancer care. Our guest is Monica L. Albertie, Director of Research Operations for Community Outreach and Engagement at the Mayo Clinic Comprehensive Cancer Center. She provides operational leadership for cancer-focused community outreach and community-engaged research aimed at reducing the cancer burden. In addition to her leadership role, Monica also serves as an Assistant Professor of Health Care Administration at the Mayo Clinic College of Medicine and Science.
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Season One
Episode Seven: “Exploring the VA’s Million Veteran Program with Sumitra Muralidhar, PhD, and Dr. Jason Vassy, MD”
In this episode of PRIM&R's podcast, "Research Ethics Reimagined," we discuss the research of the U.S. Department of Veterans Affairs' Office of Research and Development, in particular the Million Veteran Program (MVP). The MVP is a national research program looking at how genes, lifestyle, military experiences, and exposures affect health and wellness in veterans. Since launching in 2011, 1 million veterans have joined MVP, making the MVP the largest research effort at VA to improve health care for veterans and one of the largest research programs in the world studying genes and health, according to the VA. We’ll speak with Drs. Muralidhar and Vassy to learn more.
Episode Six: “Connecting Communities and Researchers with Caleila Burrell, Allison Rusgo, and Amy Carroll-Scott, PhD”
In this episode of PRIM&R's podcast, "Research Ethics Reimagined," we explore the Promise Zone Research Connection (PZRC) and its Community Research Review Board (CRRB) in West Philadelphia. Our guests are Caleila Burrell, Project Coordinator for the PZRC and West Philadelphia resident; Allison Rusgo, Associate Clinical Professor at Drexel University and doctoral candidate at the School of Public Health; and Dr. Amy Carroll-Scott, Associate Professor and Chair of the Department of Community Health and Prevention at Drexel Dornsife School of Public Health.
Episode Five: “Research Ethics Across Domains With Nicholas Proferes, PhD, Sarah Gilbert, PhD, and Kyle Pittman, MPA.”
In this episode of PRIM&R's podcast, "Research Ethics Reimagined," we explore the intersection of research ethics, online communities, and emerging technologies, with a focus on Reddit. Our guests are Nicholas Proferes, PhD, who is an associate professor at Arizona State University; Sarah Gilbert, PhD, who is a research associate at Cornell University; and Kyle Pittman, MPA, who is moderator of the subreddit "Indian Country" and faculty member at Evergreen State College.
Episode Four: “Researching Justice With Jim Greiner, PhD”
Episode four of PRIM&R's podcast, "Researching Justice With Jim Greiner, PhD," is now available! Join us as we explore his work researching outcomes of the justice system, the implementation of evidence-based decision-making, and how to make IRB rulings more transparent.
Episode Three: “Connecting the Dots With Allyson J. Bennett, PhD”
In this episode, we explore how scientific research with humans and other animals is intertwined, yet plays fundamentally different roles in producing new knowledge with broad-ranging benefits.
Allyson Bennett, PhD, Professor and Chair of the Department of Psychology at the University of Wisconsin-Madison.
Episode Two: “Research and AI with Mary L. Gray”
In this episode of PRIM&R's podcast, “Research Ethics Reimagined,” we explore the intersection of artificial intelligence, ethics, and studying human behavior in the digital age.
Our guest is Mary L. Gray, Senior Principal Researcher at Microsoft Research and Faculty Associate at Harvard University’s Berkman Klein Center for Internet and Society.
Our guest is Mary L. Gray, Senior Principal Researcher at Microsoft Research and Faculty Associate at Harvard University’s Berkman Klein Center for Internet and Society.
Episode One: "Making Science More Accessible"
In this episode of PRIM&R's podcast, “Research Ethics Reimagined,” we explore the intersection of artificial intelligence, ethics, and studying human behavior in the digital age.
Our guest is Mary L. Gray, Senior Principal Researcher at Microsoft Research and Faculty Associate at Harvard University’s Berkman Klein Center for Internet and Society.
Our guest is Mary L. Gray, Senior Principal Researcher at Microsoft Research and Faculty Associate at Harvard University’s Berkman Klein Center for Internet and Society.
Past PRIM&R Podcasts
More than Meets the IRB Podcast
PRIM&R and the Human Research Protection Office at Washington University in St. Louis(WU) have partnered to create More than Meets the IRB: A joint initiative of Washington University in St. Louis and PRIM&R, a series of relevant, and educational podcasts, provided at no cost to an ever-growing audience of research ethics professionals and lay people.
This week’s episode of More than Meets the IRB brings back the podcast’s very first guest! The new episode aims to shift the perspective of IRBs to include the often-neglected point of view of actual participants when designing consent. It also taps into the role of empathy and how researchers and IRB members can channel it to better protect subjects.
This episode of More than Meets the IRB takes us back to the early days of the internet, internet research, and internet research ethics. The advent of this powerful tool presented a new kind of challenge for IRBs, who must figure out whether and how the existing bioethics research principles apply in online spaces.
Today’s episode of More than Meets the IRB explores the research ethics field’s origin and the values behind its foundation. Given the impending implementation date of the revised Common Rule, now is an excellent time to reflect and discuss the research ethics field, the history of the IRB, and the reasons why it all started.
In this installment of the More than Meets the IRB: A Joint Initiative of Washington University in St. Louis, and PRIM&R, we talk about the ethical and regulatory considerations of research on medical practices (ROMP). Dr. Benjamin Wilfond, director of the Treuman Katz Center for Pediatric Bioethics and a pulmonologist at Seattle Children’s Hospital, recently published a study on the ethical and informed consent considerations of research on the types of care that work best in clinical practice.
In this episode of More than Meets the IRB: A Joint Initiative of Washington University in St. Louis and PRIM&R, we speak with Dr. Robert Klitzman about transparency and consistency of IRBs in addition to their sometimes-fraught relationship with investigators.
In this episode of More than Meets the IRB: A Joint Initiative of Washington University in St. Louis and PRIM&R, we speak with Fred Koning, M.Div, Th.M, M.S., about the role of the non-scientist community member on the IRB.
In this episode of More than Meets the IRB, we talk with PRIM&R Executive Director Elisa Hurley about the controversial elements of the NPRM and those that ultimately made it into the final rule. This episode considers challenging questions about the future of research: what might change in how we build policy within the United States?
In today’s episode of More than Meets the IRB, we hear from awardee of the Presidential Medal of Honor Dr. Anthony Fauci on some of the ethical challenges he faced in addressing the HIV/AIDS pandemic. It’s an engaging and wide-ranging narrative: from Fauci’s publicly denouncing the FDA’s process of delivering certain drugs to individuals to his receiving presidential acknowledgement for a creative idea of how to bring drug access to these patients.
In today’s episode of More than Meets the IRB, we listen in on a conversation from PRIM&R’s AER14 Conference among members of Henrietta Lacks’ family, a member of the NIH, and a representative from Johns Hopkins University.
Today’s episode of More than Meets the IRB investigates the role of ethical review in a dramatically changing scientific landscape where ineptitude, not ignorance, is becoming a focus of public health. Dr. Atul Gawande reveals a practical solution that is successfully addressing ineptitude among surgery teams across eight different locations around the world.
Today’s episode of More Than Meets the IRB includes segments from a panel discussion entitled “Increasing the Public’s Understanding of Clinical Research” and focuses on the question of why minority groups are less likely to participate in research. Giselle Corbie-Smith and Margo Michaels are the featured presenters.
Dr. Susan Lederer is the chair of the Department of Medical History and Bioethics at the University of Wisconsin, and the author of "Flesh and Blood and Subjected To Science".
Today we’re talking to Karen Masterson, the scientific journalist who wrote The Malaria Project, a book detailing the history of the US government’s attempts to find a cure for malaria during World War II.
With the proliferation of social media in our daily lives, the way we communicate has been completely transformed. Jeff Hancock, formerly a professor of information science and communication at Cornell and currently a communications professor at Stanford, who is well known for his research and TED Talk on how people use deception with technology.
The issues surrounding human subject protections and the participant-researcher relationship do not lie in technical non-compliance.
On today’s episode of More than Meets the IRB, we talk with PRIM&R Executive Director Elisa Hurley about the controversial elements of the NPRM and those which ultimately made it into the final rule.